July 12, 2019 – This day changed everything!
Ever since losing sight in my right eye in 2016, I’ve had headaches. Some worse than others, but nothing that overly worried me or my eye doctor. But on Friday, July 12, things changed…for the worse. As I was putting a mug of soup in the microwave, I noticed some weakness in my right arm. Shortly afterwards, I couldn’t make my arm move. But it passed, and I retrieved my soup and sat down to enjoy it. About 1/2 hour later, as I was returning my mug to the sink, I suddenly didn’t feel good. When trying to get to a chair, my entire right side went numb and down I went, to the floor…hard. I ended up with a bruised tailbone and a goose-egg on my head.
Karen was at work and would be home in about 2 hours, so I sent her a text to call me. I really wasn’t sure if I should call 911 or not. I was able to regain my limbs and sat in the chair, waiting for her to call. Unfortunately, she did not see my text until she was ready to leave work. After discussing it when she got home, we felt I needed to be seen by medical personnel. So, off we went, First to one Urgent Care with a 2-hour wait, to one just down the road, that ended up not having a doctor but wanted to call an ambulance immediately for me, to the emergency room. I was asked what took me so long to get there! Lesson learned: next time dial 911 and let those really good looking paramedics and firemen take care of me in my time of need!
I had another ‘episode’ (that’s what I’m calling it) while in ER. Off for a CT-scan and MRI. Inconclusive. Another CT-scan and MRI, with contrast this time. No, I didn’t have a stroke or so I was told at the time. But that only answered that one question. What did I have? Yet another episode occurred during my 5-day hospital stay resulting in more scans and tests. Discharged with a diagnosis of “Mystery Woman”. The only thing found was a narrowing of an artery to the brain (stenosis). Not bad enough for surgery. Guess you have to be on death’s door for that to happen. I should be thankful, right? And a new medicine to keep my blood pressure what would normally be considered dangerously high. Oh yeah, and the no travel/no fly order. Which is a hard pill to swallow since we have 3 upcoming trips between now and September.
When I got discharged, I was told to follow-up with my primary doctor and the neurologist, within 1 week of discharge. Easier said than done. I do not actively have a PCP. I have enough specialists that I don’t feel that I need one. I go to Urgent Care or Minute Clinic for minor things or the pharmacy for my flu shot. The soonest I could get in to see the hospital neurologist was 2-1/2 weeks and they were a very difficult office to contact and speak to. Another recommended neurologist gave me a date of October! Karen is great with research and was bound and determined to get me into a neurologist sooner rather than later. She made it happen in 2 days! The 3-hour office visit also stumped this neurologist, who reviewed all the hospital tests. More tests were scheduled and completed.
Anyone who knows me well, knows that I can be an impatient waiter. Especially when it’s something important such as test results. I’m anxious. I’m nervous. I’m dreading what’s to come, while wanting answers to the why of it all. And if I can travel/fly as our first trip is in 5 days.
Through this whole mess, Karen has been my rock. My advocate. My cheerleader. My nurse. My chef. My chauffer. My everything! What would I ever do without her? I hope to never have to find that out. Words cannot express my love for this child of mine.
Friday, August 2:
Today’s the day for the results. Didn’t sleep well. Gonna be a long day! And…the results are in: More tests are scheduled for next week. More doctors next week. More uncertainty. Nothing conclusive…yet. Maybe I did have a stroke, a long time ago. Maybe I had TIA’s more recently. Maybe I had a seizure. Probably what’s going on with my right side has nothing to do with the left side of my brain. Probably. Maybe this. Maybe that. Just frustrating!
Trip #1 – Las Vegas
Hotel: cancelled.
Rental car: cancelled.
Flights: cancelled.
Suitcase: Back in the closet.
Disappointment: High.
Trip #2 – Boston
Scheduled in about 3 weeks.
Flights: booked.
Hotel: booked.
Exhibition tickets: to be booked. Looking forward to seeing Downton Abbey Exhibition. Hopefully the no travel/no fly restriction will be lifted by then!
Trip #3 – 7-day Fall Cruise out of NYC
Less than 2 months away. Fingers crossed!
Update: August 7
Well, the neurologist has finally determined that I had a stroke on July 12, with a ‘stutter effect stroke’ the next two times while in the hospital and a previous stroke sometime in my past that I have no recall of having. No more testing from his area at this time. What a relief! I’m about tested out! No guarantees, of course, that I won’t have another stroke, but so far I am doing much better. Return appointment made for October. On Friday, I go to a new (and much younger than 80!) cardiologist that has excellent HealthGrade scores. I’m imagining he will put me on new heart medicine, as the hospital played with my meds while there and attempted to keep my BP out-of-this-world high. I don’t really think there is much else to be expected from that visit.
Right now, I am planning on my Boston trip and Fall cruise. Still waiting for American Airlines to confirm my refund from the canceled Vegas trip (will initially respond within 7-10 business days, which will end up being about 3 weeks after my scheduled flight!). Always amazes me that it can take so long for a company to refund money that they took without delay at the onset! If I don’t get any satisfaction from American Airlines, I will be contacting my travel credit card and let them deal with it.
Update: August 9:
Visited a new (and much younger) cardiologist. No more tests. No new meds. YAY! And he removed the No Travel/No Fly ban! Even though it was cautious to cancel Vegas, I’m guessing we could have gone. Now will have to figure out another date to plan that trip. He’s my new favorite doctor! We are monitoring my blood pressure and will go back in 3 months. Hopefully, this takes care of that!
Question: What are the odds of finding 3 specialists that you actually like?
Answer: In my case, very good!
So, for those of you following my life and my blog, that’s a wrap! At least for this chapter!
Your health is everything! Be good to yourself!
